How long does the study last?

The study is a 2-year-long observational study. Three visits take place at Baseline, and the remaining two visits taking place 24-months later.

 

Will I receive the results of my any of my scans?

The scans used in this study are for research purposes only. You will not receive the results of any of your scans unless there are significant findings that would require us to send them to your PCP for medical follow-up. In the case that you decide to follow-up, this would not be considered part of the study and all doctor's recommendations would be subject to your Medical coverage.

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What is a Lumbar Puncture and are there side effects?

Lumbar puncture (LP), also called a spinal tap, is the procedure doctors use to obtain a sample of cerebrospinal fluid (the fluid that surrounds the brain and spinal cord) for testing. When performed by an experienced doctor, LP is safe and involves minimal discomfort. There is no risk of paralysis. 

The most common problem after an LP is mild back soreness. This often occurs because of the position you have been in during the LP. A headache, which can range from mild to severe, can also result from having an LP. A mild headache may feel like any other headache you have had before. A severe headache, though very uncommon, would be painful when sitting, standing, walking, or bending over. However, when you are lying down, the headache lessens. In addition to the severe headache, you may also experience vomiting, ringing in your ears, or dizziness.

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Will you tell me if the findings show that I have Alzheimer's Dementia? 

All testing is done for the purpose of research only. For that reason, we are not allowed to diagnose any type of dementias. However, if testing results show anything abnormal we may forward them to your PCP and you can elect to follow up with them.

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How long do I have to wear Activity devices?

The hip and wrist devices should be worn for 7 days between Study Visit 1 and Study Visit 2. The hip device should be worn for at least 7 waking hours for 7 days.

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Do I have to know how to use ZOOM to be in the study?

You do not have to know how to use ZOOM to be in the study. The remote portions of our study are conducted via telephone and email, but we are able to make accommodations. 

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